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Thread: Going in for cancer surgery tomorrow - bladder

  1. #161
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    Gullible has a reputation beyond reputeGullible has a reputation beyond reputeGullible has a reputation beyond reputeGullible has a reputation beyond repute
    Had my second dose of chemo last week. I felt nausea all this week, glad its my week off. They give you 2 weeks on then one week to recover, then 2 weeks etc. I've noticed I'm shedding a lot more hair than usual in the shower so I guess that lovely side effect is hitting too. They give you a drug for nausea but it has lots of side effects so need a pill for those side effects too then one for that pill etc. I'm trying the potassium ascorbate that may be the miracle cure

    But I can't complain too much, you just look around a little bit and see people worse off, some much worse off. Chemo is a pain but having failing kidneys means you have to go in every week for the rest of your life, not just for a couple months or so. Some have to go in 2 or 3 times a week with little to no hope of recovery just gradually getting worse. I at least have a chance of beating this. And we all know of some who live with life long pain and medications failing them if they can even get the meds.

    So I'm just going to finish this course of icky medicine and go out and have fun. I will visit places I haven't been in many years and some new ones. I will try to make new friends and go see the ones I already have. I will try a lot of new things

  2. #162
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    calgal99 has a reputation beyond reputecalgal99 has a reputation beyond repute
    Quote Originally Posted by Gullible View Post
    Had my second dose of chemo last week. I felt nausea all this week, glad its my week off. They give you 2 weeks on then one week to recover, then 2 weeks etc. I've noticed I'm shedding a lot more hair than usual in the shower so I guess that lovely side effect is hitting too. They give you a drug for nausea but it has lots of side effects so need a pill for those side effects too then one for that pill etc. I'm trying the potassium ascorbate that may be the miracle cure

    But I can't complain too much, you just look around a little bit and see people worse off, some much worse off. Chemo is a pain but having failing kidneys means you have to go in every week for the rest of your life, not just for a couple months or so. Some have to go in 2 or 3 times a week with little to no hope of recovery just gradually getting worse. I at least have a chance of beating this. And we all know of some who live with life long pain and medications failing them if they can even get the meds.

    So I'm just going to finish this course of icky medicine and go out and have fun. I will visit places I haven't been in many years and some new ones. I will try to make new friends and go see the ones I already have. I will try a lot of new things
    Hey, @Gullible. I am also sad that you are having to deal with all of your medical issues, but I wanted you to know that I am very happy every time I see one of your posts, and I am in awe of your perspective of your situation. I think we mostly agree that a positive attitude can only help with what hurts us, but you are a very special person, and your attitude is remarkable. I hold you in my thoughts and hope that you will come out on the other side of this in better circumstances. Peace.
    Helpful Seychelle Rated helpful
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  3. #163
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    Quote Originally Posted by calgal99 View Post
    Hey, @Gullible. I am also sad that you are having to deal with all of your medical issues, but I wanted you to know that I am very happy every time I see one of your posts, and I am in awe of your perspective of your situation. I think we mostly agree that a positive attitude can only help with what hurts us, but you are a very special person, and your attitude is remarkable. I hold you in my thoughts and hope that you will come out on the other side of this in better circumstances. Peace.
    Same here @Gullible,
    Aquiring inspiration from your very positive posts
    Like Gullible liked this post
    We are not prisoners of fate, just prisoners of our own minds
    FDR

  4. It's really important to consider 2nd, 3rd, and even 4th opinion when dealing with something that you feel is very wrong. We can feel that instinctively in our body so if money is available, we should really consider going to the best doctors.
    Like Lifeliver, djrick liked this post

  5. #165
    I take L-Lysine supplements for my mouth when I bite my lip or my tongue to heal quicker. My Dad found out he had bladder cancer several years ago and he's had to go through a few rounds of immunotherapy and so far we've been really lucky and he's beaten it each time. I got him to take L-Lysine and it seems to help him recover faster from biposies. I also brought it up with his Urologist and she was a little annoyed that he hadn't fully read all the literature she gave him because apparently it suggested to start using that supplement. It's cheap and definitely worth asking your doc about.

    I am impressed pretty much every time I take it, because it really does seem to make wounds heal faster.
    Last edited by cupeater; 2 Weeks Ago at 11:42 PM. Reason: mistakenly said chemo instead of immunotherapy
    Helpful djrick Rated helpful

  6. #166
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    Why didn’t they do the TB wash?

  7. #167
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    Gullible has a reputation beyond reputeGullible has a reputation beyond reputeGullible has a reputation beyond reputeGullible has a reputation beyond repute
    I did do imunotherapy after my first bout of cancer. Took the bcg tuberculosis treatments for over a year but then it came back the next year. I spoke to several doctors before deciding on the surgery and did extensive reading.

    Considering the constant roadblocks the hospital put up forcing the operation further back, maybe I should have gone elsewhere but this doc had lots of robot surgery experience so I went with him. But then it turned out to be too late and the cancer had started to escape so now we will see if chemo mops it all up. The nausea is still there but they gave me a new prescription with perhaps less sides.

    I'm not going to worry about it, we all go to a better place when we die. Our choices make a big difference in how long we linger here but in the end what is going to happen will happen. This has at least woken me up from the slumber of work, make money, save, repeat. Now my job is to get over this and have more fun. By the time I'm done with chemo hopefully the virus panic will be over. The death rate from that is low and only hits mostly those with pre-existing conditions and who are old. Wait, thats me! but I still am not worried about it.

    Moral of the story is having fun is an important part of life that sometimes we neglect. We need to build friendships and maintain them or they drift away. So many people I knew are gone so I go out and meet new ones. I will be traveling later this summer and hope to go abroad in the fall. Any suggestions on fun things to do? Maybe an amusement park I haven't been to, maybe a trip to vegas, maybe a bunch of things

  8. you have such a good attitude, @Gullible. i'm sure you made the best decisions you could at the time. now it's time for fun! treat yourself and be healthy enough to enjoy it. we always put off good things for later, but now it's later.

    i hope the nausea gets better. there's nothing i hate more than feeling nauseous. hope hurricane season leaves you alone too!
    Helpful Gullible, El Grandote Rated helpful
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  9. #169
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    Gullible has a reputation beyond reputeGullible has a reputation beyond reputeGullible has a reputation beyond reputeGullible has a reputation beyond repute
    I just got a statement from my insurance company on the total cost. The doctors, tecs, hospitals, etc all charged a total of just over $300,000. My insurance company "allowed" some $35,000 meaning thats all they get. The doctors, hospitals etc said 'fine ok'. I wonder if we would get such a break if we didn't have insurance or it wasn't covered? I doubt it, they would want a bunch up front maybe the whole thing. If they make money at 35k why did they ask nearly 10x as much?

    This is my week off from chemo, I can hardly wait for it to be over but have 4 more to go. Still feeling nausea despite the drugs to combat it. Could be worse. I believe much of my good mood derives from the tens unit tickling my vagus system. I wrote about it in another section. Right ear for lowered blood pressure and left ear for mood. It helps a lot
    Helpful Blackbird123 Rated helpful

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