Anyone had stem cell therapy?

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Gullible

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This is an exciting new field of medical science. They take stem cells which are cells that have not differentiated into muscle, bone, nerve, etc and put them into an organ to replace tissue and heal. Here is a quote from mayo clinic on this

Stem cell therapy, also known as regenerative medicine, promotes the reparative response of diseased, dysfunctional or injured tissue using stem cells or their derivatives. It is the next chapter of organ transplantation and uses cells instead of donor organs, which are limited in supply.

Researchers grow stem cells in a lab. These stem cells are manipulated to specialize into specific types of cells, such as heart muscle cells, blood cells or nerve cells.

The specialized cells can then be implanted into a person. For example, if the person has heart disease, the cells could be injected into the heart muscle. The healthy transplanted heart cells could then contribute to repairing defective heart muscle.

Researchers have already shown that adult bone marrow cells guided to become heart-like cells can repair heart tissue in people, and more research is ongoing.

It has been used to treat arthritic knees, hips, and other areas. There is a danger of rejection and the cells could grow into the wrong type of tissue. One way around it is to grow stem cells from the patient and inject them back in. The stem cells usually will form the same type of tissue they are put into.

There are places local that advertise the procedure for arthritis mostly. Has anyone tried this or is interested in trying it?
 

Rylee

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Hi Gullible! How are you? I have read up & seen some info on it. It could be Very good. I'm unsure if crispr is related? It's very current & sounds relatable. Plus very exciting!

I have to go but I wanted to say hello & know I'm thinking of you! Always!

I am also doing something that is helping my health Greatly! It's So hard yet I'm on the path, it's not meds. Or anything to do with this place, yet it could extend my lifetime! I will tell you about it soon. Take care, I'll be back soon with information hugs to you:clapping:
 

alabraska

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Hi. Thank you for posting this. I have the same question. I am only 50 but have stage 4 osteoarthritis in both knees. I've tried PRP, various injections, the procedure where they burn your nerve endings and arthroscopy in both knees but, unfortunately, nothing has worked. I live in Minnesota and have thought about going to the Mayo Clinic. There is a reputable doc in Minneapolis that does this stem cell work. However, when you read the fine print, they highly suggest having monthly prp procedures along with the stem cells for the first few months. Insurance doesn't cover either procedure and the cost of PRP alone is around $1000 per knee so for me it is just impossible. My docs are telling me that my only option is knee replacement but, as a single working mother of 3 under 12, I just can't do that without help. I would really like input from everyone as well as to whether you have found and insurance company that covers alternative treatments for osteoarthritis and what has worked for you. Thanks!
 

Doc Rogue

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I have recently had this brought up to me by a friend who deals with spine issues. I’ve just started reading up on it, and have much more to learn. But I am very curious if anyone on here has or knows of someone who has undergone stem cell replacement therapy, and what their experience was like and if they’ve gotten any relief or seen improvement. I’ll definitly be watching this thread for others to respond to.
 

Gullible

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I have gone to one of the local seminars on stem cell treatment. A doctor (chiro) gave the lecture. It was interesting but basically a sales pitch. They wanted "5 to 6 thousand" for the treatment, that includes some extras like using their machines etc but only one treatment. I was tempted because I have a very bad ankle joint as well as lesser problems with knee and wrist which have all been kept manageable with ultrasound plus supplements. But I'm waiting to hear reports from people with similar problems who got better

They told us 98% of their patients would do it again. I found that hard to believe although we do want to believe don't we? My thinking is if it worked that well for severe cases then it would be much more mainstream. If it helps mostly the more minor problems and only helps a little with severe arthritis, then its still a good thing but expensive

So I have little more to report on this however I am looking into another type of treatment which supposed to be good for not just arthritis but also brain injury, nerve problems, insomnia, regrows hair, helps the heart and other things and its cheap. Sounds too good to be true already, doesn't it? But ultrasound turned out to be great and its cheap so I will look into it. I don't want to derail the thread but its called lllt. I will make a new thread with references to medical research and probably will pick up a unit and give an in person report later.

I haven't given up on stem cell but if it just reduces discomfort for a few months and you need another treatment, forget it. My US unit does all that for free. I will keep watching reports and may try it later
 

VEDA

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@Gullible. I would love to do stem cell treatment. You can do it, in the US? I've heard of people going over seas, some with great results, others, not so much. Keep this thread alive. I've tried so many different things, over the years, to heal my body. I did hyperbaric oxygen treatment, in this old school, tube, bubble looking thing. I had to put on a mask. I thought it would be like just breathing this incredible oxygen in, but it wasn't like that at all. It was kind of difficult, but I did it twice a day, for a couple of weeks. At first, I thought it was great, but it didn't last. It wasn't worth the money.

Peace
 

Gullible

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Yes its allowed in usa but they are limited in what they can claim it will do. Except when you talk to them and they say it fixes everything, lol. I would like to see more reviews from people who tried it rather than rely on the reviews they offer you at the clinics. You know they cherry pick them.

It is supposed to work for many things so probably we will hear more about it. I'm going to hold out for ankle replacement I think which is a more permanent fix. But it could be good for other things. Right now I'm experimenting with red light treatments.
 

VEDA

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@Gullible. Did you buy a product, for red light therapy that you can use at home, or are you using something at an alternative medicine clinic. I see you can purchase a red light bed, like a tanning bed, for a mere, $60,000.00. I know they have a lot of hand held units.

Peace
 

ethom

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My best friend had it done for $15,000. It did nothing for her. Results vary but it ended up being a waste of money and time for her (she had to fly from Hawaii to California to get it done.)

I don't suffer from the severe pain that a lot of people do on this site. I think I'd try it if I was in that much pain. It's just a lot of money.
 

Gullible

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@Gullible. Did you buy a product, for red light therapy that you can use at home, or are you using something at an alternative medicine clinic. I see you can purchase a red light bed, like a tanning bed, for a mere, $60,000.00. I know they have a lot of hand held units.

Peace

I bought a home unit, rather than hijack this thread we can talk about it in the other thread.
 

Victoria123

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@Gullible
Thanks for posting this. I hadn’t heard of this procedure until you posted it back in 2017. It fascinated me then and I didn’t know that I’d be getting involved with it all this time later. It took me ages to find your post and start a ton of research back in October.
I’ve had umbilical cord blood and cord tissue stored in multiple samples. Apparently this means that specialists can thaw the amount required for a treatment and leave the remainder in storage for future therapies.

separate samples are being cultivated so that there could be enough to treat an adult opposed to a baby. I hope my son doesn’t ever require it but at least we have it.

In the UK placenta/cord is medical waste and destroyed. I’m so glad you made that original post.
Thank you.
V :)
 

Omega_Human

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I can't afford stem cell, and yes they can do it in the states. They take some bone marrow from the hip, and some fat from where ever. Embryonic stem cells are another story. Bush II made all stem cell research illegal in the US out of ignorance, and that screwed things up for everyone.
I've had several rounds of PRP, but mostly use Prolotherapy because of costs. Dr's used to be able to off-label throw in a dose of HGH for a couple hundred extra but they said they were no longer able to prescribe HGH for that.
I already had a Dr / Patient relationship when I asked "what if I bring my own HGH?" and they were fine with injecting it into joints. I don't know if I would bother without the HGH.
 

Gullible

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I didn't know hgh was helpful for joints. I went to a stem cell seminar, there was a chiro giving the sales pitch. I'm thinking about it but I want to see more data on how well patients did with it first. They always show you positive endorsements but you never hear much about the ones where it didn't work or there were complications.

Its fairly expensive, around 5 or 6k, but if it was guaranteed to do the job or at least stop the discomfort I'd do it right away. If it worked great for a few years and you had to do it over again, I'd probably do it but it may not do anything. They won't give you a list of all patients and what the outcome was let alone be able to talk to them.

Its very promising but I'm watching and waiting. One good thing is I havent heard a lot of complaints about it, no news stories about people saying they got ripped off. No news is good news.
 

steve12345

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"Its very promising but I'm watching and waiting. "

I am also on "Watch and Wait". I also donate my Bone Marrow and Blood when I have labs done. I am hoping that my Marrow or blood might help the researchers come up with a Cure even if it is not for me (in the future).
 

Omega_Human

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I didn't know hgh was helpful for joints...
Used systemically, I would say it is not good for joints. There can be swelling and a lot of pain with HGH use, especially at the levels that self-medicating people are likely to be using / abusing. It can even lead to enough swelling to constrict a nerve and that is no friggin fun!
However - local application and whatever cells it comes in contact with is different. It's only active for a very short period of time (sorry, no sources to cite). Like PRP, platelet rich plasma where the platelets are chock full of growth / repair hormones cause a rapid healing effect. And it hurts.
I remember when textbooks / teachers described what platelets were, the (bad) descriptions / examples were that a platelet itself would wedge itself into a wound such as a cut and cause it to "clog" and stop bleeding. What is causing the healing is the plethora of growth hormones that include IGF and more than I can spout off the top of my head.
 

Gullible

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I looked into it a little more and I may do it. There are several places within driving distance but I will have to check them out first. I heard there was a place healthgrades.com where you can check out doctors and clinics.

I also found a forum where people discuss their experiences with stem cell. The majority were positive, around 85 or 90% but some had no results and a few got worse. The bad thing is they aren't allowed to name the doctors or clinics so you have to go by the region and clues they give you
https://ipscell.com/2016/04/if-youve-had-a-stem-cell-treatment-how-was-your-experience/
 

Omega_Human

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Definitely, without any hesitation do whatever it takes to find the Dr / practice with the best reputation.
Just because a Dr buys some of the tools needed to start such a practice doesn't mean they have "the healing touch". It sounds like a load of fluff but some are simply better. There might also be shortcuts, like using ultrasound to "see" where they are working as opposed to fluoroscopic imaging.
I eventually trusted my Dr enough to not use any imaging during certain procedures (not spine). He hit a nerve a couple of times (ouch), at which point the limb would involuntarily extend itself. He would joke "it's almost like I hit a nerve or something?" to break the awkwardness. He knew the only thing I could mutter would be an F YOU! But after catching a breath responded with a shaky chuckle "YA THINK?!"
This particular Dr's view on Stem Cells, PRP, and Prolotherapy was that if he only had one tool to work with it would be his Prolo solution. His practice also pre-treats the region with lidocaine injections which makes everything much easier.

My point, get the best Dr you can find. It may take a few months before you can see the actual Dr, but you can be seen by his assistants who may be able to provide some relief before the big expensive treatments. Maybe also bump your case up if they see it warranted.
 

Uncle Rob

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I think it really depends on the condition you are trying to treat. My Chiropractor became quite ill a few years back, collapsing and spending a number of weeks in the hospital, all the tests that could be thought of were run on him, with nothing conclusive. He is also a licensed naturopathic doctor, so through tests he ordered for himself, when he was released from the hospital, he found his "Black Mold" titers were off the chart. He tried many different allopathic and natural treatments to try and come back, ended up going to Mexico for stem cell treatment. Well, $12,000.00 later he said he felt it did nothing for him, in the recent interval he started doing MAH (Major Autohemotherapy -Ozone) and told me finally, after 4 years he finally feels like something is working for him.

He says he remembers doing some repair/reno work in the basement, where he did see mold and these was a heavy moldy smell. Super regrets not wearing an N95 mask, says he should have known better. Always were a mask when doing any kind of remodeling, especially in the basement and washrooms, or were there is even a hint of mold smell. That stuff can literally kill you.
 

Qtrgirl

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Just a word of caution here. Be very careful with who you receive therapy from. My specialty is eyes. I’ve been in the field for over 18 years. There was an article not to far back of a clinic in Florida injecting patients with stem cells for macular degeneration. It’s a very promising treatment for it as we currently have no cure or even treatment for the dry form. Just a vitamin formulation that slows the progression. We slowly watch patients lose all of their good central vision and there’s not much we can do. In this case the doctor offering this “research” for these patients was NOT trained in eyes. Retinal specialists are highly trained in eye injections. These patients were understandly desperate. So they are injected with stem cells by this physician. The result: many of them suffered retinal detachments and other complications. They lost the very limited vision that they had left. Stem cells don’t fall under the jurisdiction of the fda so it was actually legal. It was a huge set back in stem cell therapy. Please make sure the physician you are working with is trained in the area of medicine that you are looking into.
 
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