Going in for cancer surgery tomorrow - bladder

Recommended Pharmacies on Pharmacy Reviewer

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
My primary doctor is an idiot and just dismissed my complaints about blood in urine so many months passed. WHen I finally insisted on seeing a specialist he said time was of the essence.

Any tips from those who when through it? They are going to remove the mass, already determined it was cancer. He gave me no pk's after the preliminary procedures and I was in great pain the next day and lesser for several days so I told him I needed something after the surgery which is tomorrow. Just in case he is fanatical about grin and bear it. To heck with that noise.

I go in tomorrow, if I no longer post then the operation was a success but the patient died. A little bedside humor.

All I have in terms of pk's at home is some crushed poppy pods which I can make tea out of. Hopefully I get something cause if just the scope then a biopsy hurts that much this will be worse for sure.

Then I guess chemo and or radiation both of which have nasty sides.
 

notcharlotte

Exalted member
Joined
Jul 21, 2013
Posts
4,154
my only tip, @Gullible, is to absolutely insist on painkillers, even if you have to call the hospital president. then find a doc willing to treat the pain of cancer patients. that was ridiculous, not to give you anything.

i'm so sorry about your going through this and am wishing for a good, pain-free recovery. please be well.
 
Last edited:

Call

Lapsed Senior Member
Joined
Jun 27, 2013
Posts
341
Unbelievable. If your unable, I would have some1 close to u contact an attorney asap. Smh. Blood in urine is a huge red flag. I'm hoping the surgery will be a success and the last thing you need is to be stressed but I'm shocked at ur doctor.
 

Carter

Renowned member
Joined
Apr 21, 2011
Posts
5,825
Truly sorry to hear all this @Gullible

Sounds like you were truly f'ed by your PCP's "incompetency"...and then no pain meds from a surgeon after getting major surgery? That's insane and has been mentioned inhumane.

Hoping, praying we here back from you at some point in the not too distant future.
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Well, I'm still kicking so got past that hurdle. I may not have been clear in my OP, I did not get pk's from the minor procedures they did last week, not talking about the surgery. He gave me 40 oxy with tylenol today which is a lot. They insert a giant tube through the penis and he remarked I had scar tissue or something making it worse. I did not ask for pk's at that time, could have taken ibuprofen or something but aspirin and other things promote bleeding so I didnt. I tried some bunk med called urinary pain relief from walgreens, do not waste your money. All it did was turn urine red, no noticable relief.

Today, they went in the same way and removed the mass, seems hard to believe they can do all that but way better than being cut open. Got a general knockout for that. Doc is not sure if they can save the bladder which means major surgery and after that, a bag much like a colostomy bag but for piss, if you will excuse the term. I'm catheterized now with a bag and tube. The good part is I don't have to get up or use my jar by the bed tonight and can drink all the water I want. They even encouraged it.

I have no plan to sue the pri care doc even though I think he is an incompetent jerk. I will however not go back. If he sends me a bill for the last visit I will give him a piece of my mind for sure.

A big thank you to all who offered encouragement and advice. I've only discussed it so far with my close friends and now with my PR friends. Thanks for the support and kind words. There is a possibility it has not metastacized or gotten to the point I lose the bladder and I may beat it entirely. I prayed a lot before the operation and after offering thanks. But we all die sometime, if not sooner then later. I'm philosophically resigned to it but when it hits you right between the eyes its hard to not feel sorry for yourself.
 

ethom

Honorable member
Joined
Jul 29, 2016
Posts
464
I'm so sorry you are dealing with this - cancer is bad enough but it sounds like you will be dealing with this for a long, long time. It must be tough knowing they may remove your bladder and you'll have a bag with you at all times. Really am sorry to hear this.

I assumed the surgeon would give you pks. My husband is a surgeon and he said he always gives pks after surgery - it's a big deal. I think the government is really after primary care practitioners who give out pks more than surgeons. At least that's the side I see. Husband says he has never been told to limit pks after a surgery. BUT he also mentions that he doesn't refill them.

Best of luck to you.
 

jaders

Eminent member
Joined
Feb 1, 2012
Posts
1,952
Well, I'm still kicking so got past that hurdle. I may not have been clear in my OP, I did not get pk's from the minor procedures they did last week, not talking about the surgery. He gave me 40 oxy with tylenol today which is a lot. They insert a giant tube through the penis and he remarked I had scar tissue or something making it worse. I did not ask for pk's at that time, could have taken ibuprofen or something but aspirin and other things promote bleeding so I didnt. I tried some bunk med called urinary pain relief from walgreens, do not waste your money. All it did was turn urine red, no noticable relief.

Today, they went in the same way and removed the mass, seems hard to believe they can do all that but way better than being cut open. Got a general knockout for that. Doc is not sure if they can save the bladder which means major surgery and after that, a bag much like a colostomy bag but for piss, if you will excuse the term. I'm catheterized now with a bag and tube. The good part is I don't have to get up or use my jar by the bed tonight and can drink all the water I want. They even encouraged it.

I have no plan to sue the pri care doc even though I think he is an incompetent jerk. I will however not go back. If he sends me a bill for the last visit I will give him a piece of my mind for sure.

A big thank you to all who offered encouragement and advice. I've only discussed it so far with my close friends and now with my PR friends. Thanks for the support and kind words. There is a possibility it has not metastacized or gotten to the point I lose the bladder and I may beat it entirely. I prayed a lot before the operation and after offering thanks. But we all die sometime, if not sooner then later. I'm philosophically resigned to it but when it hits you right between the eyes its hard to not feel sorry for yourself.

A very good friend of mine went thru bladder cancer. They removed the mass several times, over the course of several years doing the same procedure you went thru as it hadn't penetrated the bladder wall. Eventually he tried another treatment where they actually insert a form of tuberculosis into your bladder to stimulate your immune system in that area. (Just reading about it, it's only used in non-invasive cases too.) This all went on for several years, (I think at least ten,) but my friend was always reluctant to have his bladder removed and then when he finally decided to, it was too late - metastasized. Just saying, don't wait if they recommend it, I would say. I think you can get to a point where you can catheterize yourself to eliminate, but don't have to use a bag forever. (Just a bit of hope for you, I guess.)

So sorry you have to go thru this! My friend had the same symptom at first - blood in urine. Can't believe your PC didn't think that was a serious issue!!

Just wondering if you were or are a cigar smoker or have been exposed to an extreme form of pollution? My friend repaired plastic injection mold machinery for many years and breathing the plastic fumes is what they thought likely led to it, but he also smoked cigars for many years too.

Keep us posted and the very best wishes for a speedy recovery!
 

notcharlotte

Exalted member
Joined
Jul 21, 2013
Posts
4,154
i'm so glad that went well, @Gullible. i checked this for you, and there is an option to the bag. if they remove your bladder, you can a new bladder made, called a neobladder. if your surgeon doesn't do it, check around for one who does. a lot of people were refusing surgery if it meant losing their bladder, so they construct a new bladder from parts of your intestine. then no more bag.

i hope it doesn't get that far, however. and again, if you are still in pain, ask for a refill. i broke my pelvis a few years ago and got many refills. and guess what? six weeks later, fracture healed, no addiction! i was relieved to get off the damn things. it's always a good idea to get a second opinion too with a serious diagnosis. you deserve the best treatment while dealing with something so serious.

take care of yourself and i am wishing for good news.
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Thanks very much for the good words and advice @notcharlotte @Victory104 @jaders @ethom They say I only have to use the bag until possibly monday when I go in

notcharlotte, I did see something about that, using part of the intestines when I was searching on duckduckgo. My doc didn't mention it but if he wants to take out the bladder I will surely bring it up. But that is so invasive I have my fingers crossed I can beat it without that.

Oh and it was oxycodon not oxycontin, I misspoke. But it works so thats all I care about. 7.5mg plus 325mg acetaminophen. I guess the strategy is if a junky tries to use them and takes a bunch he dies from liver toxicity.

"you didnt follow label instructions, sorry"
 

Rylee

Eminent member
Joined
Mar 29, 2014
Posts
1,563
@Gullible so glad you made it through with PK!

My dad had a catheter for urine a while back for like 6 weeks, he was Miserable, said it was painful.
He still says it was one of the worst things he's been through & he's been through a Lot. So I feel for you!

Just to reiterate what Jaders said, Don't wait if they say if it's metastisized!

2 things I know about cancer having been through it, the earlier caught the better. Plus they think they know how your cancer will act, but it doesn't always follow expectations.

Plus notcharlotte found a possible alternative if your bladder needs to be removed! Not saying it would be easy, intestines are not good to mess with. My mom died from intestinal surgery. Not to scare you but it's major!
Besides healing, remember, after surgery Be Sure if you're out of breath at all, could be blood clot(s) that travel to lungs/pulmonary embolisms! They are killers! It took my moms life. She kept telling them somethings wrong & they tested her heart & blamed it on heart problems she never had! Turned out they should of given her more blood thinners, would of saved her life. Worst time of my life, lost my best friend, Best mom.

Hate to even mention it. But Please take my warning & everyone who reads this! I know they can't stop all clots but they can Stop many more that kill people after surgery.

Good luck & keep us posted. Ur in my thoughts:flower:
 
Last edited:

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Thanks @Rylee, I plan to demand chemo and even radiation no matter if they say its not metastasized. Doctors don't know everything and there could be cells lurking that will grow if you leave them unmolested.

>My dad had a catheter for urine a while back for like 6 weeks, he was Miserable, said it was painful.

Yes, its quite uncomfortable but the positive is I dont have to run to the john every little while. Gotta look at the bright side, lol

I'm also using prayer, giving thanks and visualizing light coming down. I'm thinking positive and letting go of all negative thoughts, any resentments and so on. I forgive all. They found that people with a positive attitude had a much better chance of recovery no matter the disease.

After the urologist is done with me or even if he's not done I plan to look up a cancer specialist. You don't go to a lawyer if you have car trouble, and the best specialist can improve your odds. They also found that patients who actively participated in their treatment had a better outcome. I read that chinese scullcap helps some patients with this type of cancer, there are even ncbi studies on it. I'm taking probiotics to counter the effect of the antibiotic which will kill the good bacteria. I also eat yogurt.

If medicare won't cover a treatment that looks good I'll just pay for it myself if doctors think it will help. You can't take it with you so might as well put it to good use while you're still above ground. Might be good to take a trip or two I've been thinking about, have a little fun. Soon as I feel better, they gave me cipro which is known to have many side effects, in a few patients the sides are very very bad. I didn't want it and asked not to get it but its considered the best for prostate or urinary infections. So rather than second guess the doc I went ahead and took it.

Another good thing is doc gave me lots of pk's this time and I will have some left over. Many docs under prescribe, mine gave me a stern look and said only use if absolutely necessary. I don't just pop them but when it gets bad I take one. Feels great, mood is lifted, I can see how people get hooked on them but I will not let that happen.
 

notcharlotte

Exalted member
Joined
Jul 21, 2013
Posts
4,154
you have such a great attitude, @Gullible. definitely look for a good cancer guy. get all the cells! i think you're right. people do much better when they participate in their recovery.

don't worry too much about the cipro. i've taken it for utis and you'll be fine. treat yourself to healthy, fresh food. i'm glad your pain is manageable too.
 

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,300
@Gullible...I'm glad that your surgery went well. It sounds like you've got a great attitude which certainly helps with healing. My brother in law had cancer and had his bladder removed. He had the procedure mentioned by @notcharlotte which he's been very satisfied with since he's a very active guy. His had not metasticized so no chemo or radiation for him. Just had his 5 year checkup and all is well.

I'm glad that they addressed your surgical pain issues. I've had a number of surgeries and never thought that I'd ever have any problem with post surgical pain until I lung cancer and had a lobe removed. The surgeon I had was top notch, trained in robotic surgery and used a technique that required minimal incisions...however - he did not "believe" in "narcotics" and wanted to just put me on ibuprophen. Thankfully the anesthesiologist was adamant that Ibuprophen for lung removal was totally inadequate. The doctor was truly pissed and had them pull my pain pump on day 2 yet he expected me to be up out of bed and walking around. Again the hospitalist intervened and prescribed appropriate pain meds.

What I've found over my many years is that it's a good thing to ask BEFORE any surgery..."what are your plans for pain management post surgery?" The most compassionate doctors will think ahead and give you or a family member a prescription ahead of your discharge so that you're not running around or waiting the day you leave the hospital trying to get a prescription filled.

The very best of luck to you!
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Thanks for the informative post, @Bawston. I will bet that the doctor who didn't "believe" in narcotics for pain would become a believer in short order if he was the patient. It would not take long and he would decide to be a hypocrite since he had pain. Some doctors are complete idiots and should be avoided. My doc said that in the operating room the anesthesiologist decides the sedation, not the doctor doing the surgery.
 

sonia

Lapsed Senior Member
Joined
Jan 22, 2013
Posts
256
@Gullible reading the thread and am rooting and praying for you through this stressful time. You really do have a remarkable attitude given all that you are going through. It is all very new and confusing, for sure. Much is being directed to you. You are getting some wonderful advice here.......I just have a couple of things that I want to say. Blood in the urine is such a RED FLAG that no doctor should get away with disregarding it. Trust me, I am a person who feels strongly about tort reform and that medical malpractice is often abused. But what you describe is a doctor doing a very bad job.......That being said, I can understand that a malpractice suit is a stress in itself and you need every ounce of positive energy towards n recovery. But please, don't totally dismiss the incompetence of this practitioner and let him get away with it. When you're feeling better, revisit the issue...........As for surgeons, there are too many a-h to count! Government is breathing down the necks of doctors when it comes to painkillers. He is thinking totally of himself and doesn't want anything to come up on a chart review. Kind of technical, maybe. But trust me, that's what it is A-H. I hope your follow up doctors are working this out better for you. Please @Gullible keep us posted as you recover. Keep your courage and faith. My prayers and good vibrations to you!
 

Roz

Renowned member
Joined
Jun 30, 2011
Posts
9,360
[MENTION=22835]I just have a couple of things that I want to say. Blood in the urine is such a RED FLAG that no doctor should get away with disregarding it. Trust me, I am a person who feels strongly about tort reform and that medical malpractice is often abused. But what you describe is a doctor doing a very bad job.......That being said, I can understand that a malpractice suit is a stress in itself and you need every ounce of positive energy towards n recovery. But please, don't totally dismiss the incompetence of this practitioner and let him get away with it. When you're feeling better, revisit the issue!
Yes I agree and you usually have one year B4 statute of limitations runs out.
Also any attorney in this area would get a contingency fee and not charge by the hour.
At the very least this doctor should script you PK's for as long as you are in pain.
Good luck with the Chemo too.
 
Top