Going in for cancer surgery tomorrow - bladder

Recommended Pharmacies on Pharmacy Reviewer

medi1

Eminent member
Joined
Jan 12, 2017
Posts
1,316
@Gullible I am so sorry to hear this awful news! I agree with everyone who have said you SHOULD absolutely demand PK's after such severe operations.
That is ridiculous that you were treated that way. I have an aunt who is going through terminal cancer right now and it's touch & go at this point.
Cancer is a horrible disease that effects us all in one way or another. I will be parying for you and I hope to hear from you in the forum real soon, Stick in there buddy.
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
The way I look at it, I've lived a life already, done some things, etc. I'm philosophically accepting that the end will come as most of us probably do also. But when its not 20 - 30 years down the road but maybe soon and maybe a lot of pain, thats when your philosophy gets put to the test. I did feel sorry for myself now and then but try not to dwell on it.

I'm already thinking about how to distribute my estate. Giving gifts carries a tax if its over a certain amount. I will probably give some to relatives, some to friends, some to the am cancer society and others as I think of them. We are supposed to have that in order anyway.

I intend to give it my best shot, I will go above and beyond what my present doc wants to do unless his strategy seems quite aggressive. I went and got a medicare supplement before the doc officially diagnosed me with cancer so I was able to truthfully say I have not been recommended treatment or been diagnosed with any serious illness. A bit sneaky perhaps but they are happy to take your money and never pay out or to deny a claim for any reason they can come up with. It will save some of the copay and then in oct I'll get an advantage plan plus part D.

I also plan to see a cancer specialist, maybe get recommendations and look at reviews. Doctors will recommend their cronies who send patients to them so I will place greater weight on patients reviews and opinions.

But hey, he gave me a bunch of these nice pills. I just took one and feel fine. Even when I beat this I will still be giving away a lot of stuff. I've been accumulating too much and want to give more. I have loads of herbs and seeds I'm giving away, and all the free advice you can use, lol. Though I think its forbidden to send anything to a member
 

Rylee

Eminent member
Joined
Mar 29, 2014
Posts
1,563
I will certainly look into it. Statute of limitations varies according to what it is and what state you are in. I think 1 year is the min. For a debt, they can sue even 20 years later but for torts it is limited.


Correct. Different for states. Went through it not long ago but wrongful death. Malpractice is Very hard to prove. It's easier to prove negligence than malpractice.

Thankfully you're with us & will be for a long time! But if it was neglect, for sure get the best atty you know, get references.
No charge except after settlement 33% plus their costs. Any cost paid out by insurance, Medicare if any etc needs to be repaid too :(.

No funds will be given to you until everything is paid out. It can take a Very long time.
Well worth it, you're Doctor should not have dismissed original complaint & you have no idea even now what you will be going through & how much more it grew in that time. I'd say you have a good case. It's all we have to hold bad Doctors responsible.

Hate to contribute to a sue happy society but when it comes to blatant disregard to your issue & your health! No question.

Again thinking of you:worried:

Btw @Bawston super idea about asking beforehand about pain medicine & your pcp writing rx in advance to you. Good idea but unsure how that would go? It's VERY sad Drs are So scared to write narctotics even when truly needed!

On the news the other day they did a study of writing 2days worth compared to 7 days of opiates you're a Huge percentage less to become addicted. Sorry can't remember exact but was over 50%! Well they NEED to figure something out bc this is just BS! No wonder why people have to go other routes.


ETA

@Gullible Can't say I don't blame you. I've been there. I was lucky to have a super oncologist that had an open RX pad. He'd say, what are you thinking, he was retiring shortly after too. But it was a while ago. If it wasn't for my meds I would of been a bigger mess.

No one knows unless you've been there I was alone when I got dx. I stupidly thought I was going in for no big deal. I was not expecting, yes definitely. We don't need to do anything more. It needs to be removed you have Cancer.

It's best no matter what to have a will/living will, end of life wishes-support or not or when, no matter what. Then you already have them & hope you don't need them for many years.

I can say I did what took my mind off it as much as possible. For me that was raising 2 baby coons that lost their mother, I swear they came to me for a reason. I had never raised a wild animal. No one would take the last 2 of 4.
I was off work so I walked every morning with them on either shoulder around my neighborhood. It made me happy!

Others said didn't your oncologist warn you, being on chemo you might contract something. No. I told him & he thought it was great.
Obviously he knew people will do what they need to do during this time & let them.

The babies were successfully wintered over & reintroduced into the wild :).

Do what makes You happy as often as you can :heart: And do more than medically recommend! imo. Its your life.
 
Last edited:

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Went in today and got the catheter removed, what a relief. Doc had good news and bad news. The bad was the cancer is a really bad one, very agressive type. The good news was they did not find any penetration into the muscle of the bladder. Doc said if it was there then bladder has to come out, no question about it. That means its so far so good. Doc said he has to do more scraping and digging to be sure. He gave me the name of a doc who he said was the best bladder cancer surgeon in the country for a second opinion. So I'm not out of the woods yet but can see daylight. It could have spread beyond the bladder which would be the worst case.

As for suing the incompetent doc, you have to have damages to get anything. I could sue, the jury may say he made a terrible mistake, but where are my damages to collect on? You need loss of life or limb, loss of enjoyment such as constant pain or something. Without any of that they may award a token $1. If I lose the bladder that could have been saved, then I have damages. I would prefer to simply have it all go away and not have to sue anyone.

Since I have a somewhat clean bill of health, I have several options. I can assume all is well and keep my fingers crossed. I can start chemo, or let the doc do another procedure which will of course entail more pain, maybe another term on the catheter. Depending on what he finds he may say go home and don't worry, do the chemo, or do radiation and chemo. The cancer specialist is to give more options and so he can give a kickback to my doc, lol.

I don't want to be like that person mentioned in this thread that put it off for 10 years, got various procedures and then it was too late. I see my doc again in a month.

Thanks again to all for the good words and well wishes.
 

rainey51

Distinguished member
Joined
May 24, 2011
Posts
813
@Gullible - Geesh, I missed this thread until today. I really am praying everything gets better for you.

I have a couple of family members going through chemo and radiation treatments right now.

I like alternative approaches but who knows with that too and I honestly don't know what I would do personally if I found out I had cancer, it's easy for me to say an alternative approach until dealing with it myself. The raw food diet seems to be very helpful but lots of work.

Are you still using that BCP-157? In reading about that since I've read your other posts on it, some articles said it has bad influences on some types of cancer and I can find those links and post them if you want me to.

Big hugs to you and tons of positive vibes coming your way!
 

notcharlotte

Exalted member
Joined
Jul 21, 2013
Posts
4,154
@Gullible, do get that second opinion. another doc might have different advice, like removing lymph nodes or chemo. in your place, i'd probably be very cautious and want to make sure no cells were left.

as for suing, you can have damages such as prolonged cancer treatment expenses, etc. basically, though, he screwed up, and i don't know what he was thinking about the blood in your urine. i had a uti a few years ago, and there was a big deal made of blood in my urine. i guess if it were me, i'd probably write him and tell him about how he was blowing you off when you had cancer. at least he might think about it next time he dismissed a patient's worries.

i'm glad you are well for now with no cath.
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Hi all, yes I'm still using the bpc157. The discomfort has gone down a good bit, I only took 1/2 a pain pill yesterday and may not take any at all today.

As for the cancer getting into the lymph nodes, I'm not totally sure but I believe the fact it was inside the bladder means the cancer is contained unless and until it goes through the bladder wall and spreads. So its good to watch the path of the urine for any spots where a bit may have broken off and passed out perhaps latching on in another spot along the way. Then again there is the blood supply to the bladder. But I will leave it to the docs to recommend treatment and go from there.

I'm not sure about crystals, no harm in trying something but I would not abandon regular treatments to rely on that or on herbs. I am meditating also taking scullcap which is supposed to be good for it. I took a probiotic and a few things. Will get back on my regular vites and supps soon.

Having to undergo prolonged treatment could be grouds to sue but then you get the double talking lawyers saying this study says it should have taken x amount of time no matter what. I will be pleased to simply have everything go according to plan and not have to sue anyone. So far so good, doc said there is no sign of any remaining but we all know there could be. Still, it was good news and I'm sure a percentage of patients recover totally with no other treatment at this point. Chemo will be no fun but has to be done. Radiation is no laughing matter either and can increase your chances of getting some form of cancer later.
@rainey51 I hope your family members have a good outcome as well.
 

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,300
Thanks for the informative post, @Bawston. I will bet that the doctor who didn't "believe" in narcotics for pain would become a believer in short order if he was the patient. It would not take long and he would decide to be a hypocrite since he had pain. Some doctors are complete idiots and should be avoided. My doc said that in the operating room the anesthesiologist decides the sedation, not the doctor doing the surgery.

@Gullible...I see so many people say things like "I'd never wish this pain on anyone,but..." and frankly I must not be a very nice person because I do kind of wish doctors should have to go through what their patients go through. I've had other major surgeries and each time I met with the anesthesiologist before my surgeries. It might not be the same one who will be there for the day of surgery but they all work together, they review your entire history including reactions to meds and prior anesthesia. I've found the anesthesiologist to be the most knowleable about pain management which makes sense since it's their specialty.

A surgeon cuts, that's the surgeon's specialty but he hasn't had the extensive training that the anesthesiologist has had in pain management.

I did have an excellent experience though with the surgeon who did my hip replacement. He's known in the area as one of the best and has done the most joint replacements. I trusted his expertise but he also does so many replacements that he's well aware of what most people need for pain meds during recovery. There was never a problem because as most people know, getting up and doing your therapy after any surgery, especially joint replacement is critical for faster recovery. If you're in pain, you really can't do as much physical therapy.

Since many of this surgeons patients also come from very far away, he realizes the problem with our state's restrictions on how many days of pain meds are actually needed. To go back in to the hospital while you're still recovering just to get a prescription is foolish and wasteful of everyone's time. When I left he gave me a prescription but also told me to call the office to have them mail me a new prescription.

Doing this procedure every day, he knew that 3 days of pain meds might not be enough after cutting the top, of someone's leg off, screwing in a ball joint, and inserting a new socket (not to be too graphic but when someone told me I was going to get addicted if I tookmpain meds, I explained the procedure to him and watched as he turned white then a little green around the gills).
 

Rylee

Eminent member
Joined
Mar 29, 2014
Posts
1,563
@Gullible glad your discomfort has gone down some!

Different types of chemo affect people different, actually the same can affect people different also.
My chemo wasn't hard on me! The same for others is awful. Idk why? I know it was about 9 courses a couple weeks apart sitting in that chair for hours. I remember they changed the type chemo & increased it throughout. I remember the last couple they gave me Benadryl through IV to help & omg that was a Super buzz! It has to feel like heroin bc I can't imagine feeling any better lol. But it didn't make me throw up Like morphine. I'm unable to take morphine in the hospital. I immediately throw up until it's out of my system

So I had to go to a different hospital that used demerol. I don't know if any hospitals in my area still use it? After coming out of surgeries I immediately cry, but with Demerol I still throw up a tad but not like morphine. Guess just getting the other Nasty anesthesia out of me. Then I'm a happy camper while its in my system.:) don't care about cancer, surgery, no pain or dying.

I can take mild opiates but still in pain while healing.

The radiation was Worse for me. They stopped mine early because I was So burned. Awful. I felt awful too.

My experience was awful but good because they found another tumor early at the same time. And bc of me, my sister went in & was able to have a mammogram done bc her insurance wouldn't pay for it until she was I believe 50 at the time & she was in her 30s & always a hypochondriac. So her insurance approved it because she then had a first relative & they found she had cancer too!!! Our surgeon said she had never come across this situation. They found hers Very early & didn't have to do much bc of early detection. If she wouldn't of went in bc of me then who knows? And no one in our family has ever had it. Strange, yet bc of me it may of saved her life :)

Remember they don't know if it's metastasized. So doing everything in your situation is best.
I know you are.


Oh wondering if they have given you a stage yet?

Sorry I can go on about it, it was Very bad. I lost a great friend last year who had kidney cancer & it spread. He died about 3 years after his DX.

My husband was recently dx with leukemia. So we live with it daily too.

@rainey51 sorry to hear of your relatives & hope they fully recover. :heart:

Take care Gullible. I'm always checking in on you, so Please keep us updated :flower:
 
Last edited:

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
@Rylee, thanks for the tips and interesting story. I'm glad your procedure resulted in your sister being saved from a difficult and possibly deadly outcome. I plan to start chemo soon. According to what the doctor said and what I see on the net, it must have been stage 0 or 1 because doc did not find anything in the muscle layer. If they find cancer there then the bladder has to go. Since it did not pass through the wall I assume it has not metastasized but that may be wishful thinking.

I have notice in the past 2 days pain in lower back when urinating. They say lower back pain and blood, which I'm having too, is a sign of bladder cancer but do not say if it may occur after surgery when most or all has been removed. Blood after surgery is common. I'm hoping obviously it does not mean new cancer which would be the worst thing to find. It may be possible for the original cancer to have spread in some way but since it supposedly did not penetrate the bladder wall that seems unlikely.

They did an ultrasound before surgery and apparently did not see any tumor masses. Doc did notice a cyst or two, I asked him about it later and he said don't worry about that. He saw the tumor via cystoscope and scheduled me for the next day. They also did a couple chest xrays which presumably would have seen any kidney cancer between it and the ultrasound.

@Bawston, some docs are fools who care more about what some board thinks about their prescribing than the well being and comfort of their patients. I've found that you can look up the reputation and reviews of a doctor on the net. You can also look up the reputation of the hospital, some are good some are very poor and should be avoided.

I got a bunch of pain meds from my doc, have not taken more than 2 a day, mostly 1 or 1.5 and a couple days only 1/2. Yesterday I didn't take any so I have most of the pain pills left in case later I run short from what they give me.

I found that in my state we get a min of 2 years to file malpractice and up to 4 years according to sup court rulings so I have plenty of time to see what the outcome may be before deciding about that.

I read that many cancers including aggressive ones like I was told I have usually come back. So I want to follow up with chemo and maybe radiation too to make sure it doesn't come back. Better a little pain now than a lot of pain or death later. It seems obvious but its easy to say "I just can't take anymore of this" and quit treatment too early.

Rylee, was your radiation external and was it single dose? I hear now days they have machines that give a small dose from one angle, then another and another etc so that the narrow beam comes in from many angles sparing organs but concentrating on the area being treated. Its like a strong dose but instead of hitting every thing in its path with a lot of radiation it gives only small amounts to most areas and a lot to one.
 

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,300
@Rylee...I think you're right about everyone's experiences with both chemo and radiation being different. Also the chemo drugs used will be different based on the type of cancer you have. My mother died of breast cancer ... she actually died because a doctor told her "not to worry because cancer's not painful" after she'd already had one mastectomy and then got a lump that was the size of a goose egg on the other breast. Themdoctor sent her for a mammogram and she told them to stop the mammogram because it was too painful. I digress but have to mention that if a doctor tells you not to worry about a lump and you've already had cancer, then RUN to another doctor and insist on a biopsy!

Anyway, my sister also died last year of breast cancer which was a particularly aggressive type and not treatable. My insurance at the time had recently changed their policy to allow genetic testing for breast cancer if 2 direct relatives have had it (in my case I've got 4). I had the testing done for the BRACA gene as well as a number of other mutations - all good...but they tell you there's many things they don't know about cancer.
 

Rylee

Eminent member
Joined
Mar 29, 2014
Posts
1,563
Hi @Gullible & @Bawston

Gullible, just to say, Don't say heck with it & give up! And I don't mean if you were ever in like stage 4. I can understand some wanting to give up. But just read our couple stories on here how unpredictable it is. Like Bawstons family. I'm So sorry Bawston. A dr saying you've had it before so don't worry about a lump is just unbelievable. That dr shouldn't have a license! I'm sure you're very aware for yourself even with BRACA gene showing negative. Doesn't hold much water in my eyes being negative. Only bc as you said, they don't know it all. Plus BRACA 1 & 2. So much...

So many people go through so much & my best advice, although some can't afford this or won't do it & it may not always help. Is to get a medical advocate for you. An RN or PA that knows their stuff. Besides other Drs opinions.
If you do get a medical advocate, you have a better chance. Because no one is perfect or knows for sure.

The health system I use & most have conferences & get all opinions on each case weekly.
It's good. But if you run into issues & then it's just a couple Drs opinions. imo that's where many run into problems, and not only cancer. Any procedure or surgery. That's another story, another time. But you are your best option, getting as much advice/help as possible. Especially with cancers that are one of the more deadly types. Very scary. But I know yours Gullible was caught Very early, So thankful!

It's always best to do All you can & be informed. So many don't know what to ask about their care. I Always grill them & ask what would they do & get other opinions. But I'm not an RN but work in the medical field so I try to ask all I can & hope I'm covering all the bases? But we're always learning & don't let it cause you your life!

Gullible yes my radiation was external. They put tiny tattoo dots on me in a couple places & was near my chest wall so they fried me & finally stopped early. It was too painful, blisters & felt awful. But I did all I could handle. Only stopped a couple treatments short.

So ok my situation was breast cancer. I hate talking about it bc it was tough but if it can help anyone I will.

So it metastasized but not many lymph nodes. I was pretty young too. I know this may sound crazy but hey maybe I am, I was told afterwards it was the best decision I made that probably saved my life. Or at least go through it again.

So I had to have a mastectomy on the one side. I wasn't happy. But my friend had her breasts removed because she had many members with breast cancer that died in her family & was positive for the BRACA gene. And she showed me her reconstruction, they look Perfect! Just a couple Tiny scars you can hardly see now.

Sorry if this is tmi. But I'm going to do it.

So I didn't want one natural breast & one reconstructed bc I didn't want one to get bigger if I lost or gained weight. Or one droop like natural & the other perky. I know SO vain! But I was just Pissed at it all!!! It's tough enough being judged as a woman. Yes guys are too, I know guys feel judged too.


So I told them take both & reconstruct,F it (excuse, that word but going back in my mind). I'm kind of a rebel as it is, so why not get nice boobs out of the deal? I just know I didn't want to deal with more issues forever!

So they did & they found cancer in my other breast. They were shocked as I was. So I would of had to go through it again or maybe die from it! I never thought I'd get brc as it was. So I probably would of thought it would never happen, Again & put off early detection.

My vanity may have saved my life. Funny how things work out. It was NOT easy though, by no means a huge decision & surgeries.

I'm a huge supporter of anyone with any cancer doing everything possible. My surgeon was very surprised when they got back the biopsy results after my surgery. Maybe they learned from it? I hope so bc I saw So many women in their 20s to 80s battling it.

So we'll keep checking in on you Gullible & write as much or little as you like but I know WE are here for you!!!

We Are a community that doesn't judge anyone & only supports each other.

:flower: :heart:

Don't mean to ignore the pain med issue, by No means. Of course I'll get back into that in another post.
 
Last edited:

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,300
@Rylee,
Excellent post and although I'm sure you thought twice about what you wanted to share, I think the more we speak out, the more first hand information we share, then maybe we can help someone. If your story makes even one person get a second opinion or ask more questions then I think you've provided a great service.

Everyone's cancer is unique because everyone's body is unique and you never know what might work for you. One think I think we can all agree on is - cancer sucks!
@Gullible...
I hope you stay strong and know that you've got lots of people hoping for the best for you! Keep us informed when you're feeling up tomit.
 

calgal99

Eminent member
Joined
Aug 22, 2015
Posts
1,352
@Rylee, thanks for the tips and interesting story. I'm glad your procedure resulted in your sister being saved from a difficult and possibly deadly outcome. I plan to start chemo soon. According to what the doctor said and what I see on the net, it must have been stage 0 or 1 because doc did not find anything in the muscle layer. If they find cancer there then the bladder has to go. Since it did not pass through the wall I assume it has not metastasized but that may be wishful thinking.

I have notice in the past 2 days pain in lower back when urinating. They say lower back pain and blood, which I'm having too, is a sign of bladder cancer but do not say if it may occur after surgery when most or all has been removed. Blood after surgery is common. I'm hoping obviously it does not mean new cancer which would be the worst thing to find. It may be possible for the original cancer to have spread in some way but since it supposedly did not penetrate the bladder wall that seems unlikely.

They did an ultrasound before surgery and apparently did not see any tumor masses. Doc did notice a cyst or two, I asked him about it later and he said don't worry about that. He saw the tumor via cystoscope and scheduled me for the next day. They also did a couple chest xrays which presumably would have seen any kidney cancer between it and the ultrasound.

@Bawston, some docs are fools who care more about what some board thinks about their prescribing than the well being and comfort of their patients. I've found that you can look up the reputation and reviews of a doctor on the net. You can also look up the reputation of the hospital, some are good some are very poor and should be avoided.

I got a bunch of pain meds from my doc, have not taken more than 2 a day, mostly 1 or 1.5 and a couple days only 1/2. Yesterday I didn't take any so I have most of the pain pills left in case later I run short from what they give me.

I found that in my state we get a min of 2 years to file malpractice and up to 4 years according to sup court rulings so I have plenty of time to see what the outcome may be before deciding about that.

I read that many cancers including aggressive ones like I was told I have usually come back. So I want to follow up with chemo and maybe radiation too to make sure it doesn't come back. Better a little pain now than a lot of pain or death later. It seems obvious but its easy to say "I just can't take anymore of this" and quit treatment too early.

Rylee, was your radiation external and was it single dose? I hear now days they have machines that give a small dose from one angle, then another and another etc so that the narrow beam comes in from many angles sparing organs but concentrating on the area being treated. Its like a strong dose but instead of hitting every thing in its path with a lot of radiation it gives only small amounts to most areas and a lot to one.
@Gullible, what your pcp did (didn't do, actually) is by definition, malpractice, not just negligence - you don't even have to have gone to medical school to know that blood in your urine means SOMETHING IS WRONG, even if you don't know specifically what is wrong. Whether you want to pursue the doctor via a lawsuit or not, I would at a minimum find out how to contact your state's medical licensing board and how to file a report/complaint about this doctor. Any primary care doctor who ignores a patient reporting "blood in the urine" has no business being a doctor, period. I know this isn't your main focus right now, but it's important that this doctor be sanctioned, who knows how many other patients s/he might have ignored...
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Thanks @Rylee, @calgal99, @Bawston for the high quality posts. My current situation is waiting for the next dr appt and hoping the discomfort will go down a little faster. I took another 1/2 pain pill today. Its not that it was so bad I wanted to scream out loud, it just kind of wears away at you and eats at you and becomes more during the day as I move around and aggravate the incisions. After 1/2 pill not only is the discomfort gone but I feel on top of the world. This is indeed a velvet trap and I can see how so many fall into it. It doesn't just stop pain it makes you feel better and is an antidepressant but short acting. I only take it when the pain, whoops we are supposed to say discomfort, gets too much. I have found in the past if I only take it that way and taper when pain goes down there have never been wd's or anything of the sort. When I had surgery years ago my doc gasped when I told him how many pills I was taking but not a problem at all. He kept prescribing and I even had a few left after.

My latest move was to order some turkey tail mushroom extract. I've been reading about how its very good against cancer and other conditions. Its been used in china and japan for thousands of years. They have done some govt sponsored studies that found benefit for a variety of cancers. It boosts your immune system while chemo will depress it so you need some sort of boost. The fact I've been taking mushroom extracts for years may have been the reason the cancer was not more advanced than it was and had not metastacized. Don't take ground tt, take the extract because its almost impossible to digest and get the goodies out ourselves.

I will go back to taking cordyceps and reishi mushrooms and perhaps others too. I also take chinese skullcap which is said to be good in general and also for that. No megadoses, just middle average of what the studies used. If they had daily regimens of 3, 6, and 9 gm per day, and the 9 had the best benefit, I'll start with 6 and see how I do on it. I ordered 200gm of the tt extract and thats enough for a month trial. If it seems good I will probably order the 2 lb extract. Those of you who have cancer or are survivors might want to look into turkey tail.
 

notcharlotte

Exalted member
Joined
Jul 21, 2013
Posts
4,154
just remember, @Gullible, pain is a bad sign sign. if it continues, i would call in to the nurse and ask if your symptoms are normal at this stage of your recovery. i have si joint problems and need a new hip, and those problems cause me urinary problems. apparently there are quite a few nerves around the hip area which will cause bladder pain. but it still bothers me that i keep having these bladder problems and you have inspired me to see a urologist, even though i know from reading online that si joint causes the pain. the doc agrees and is referring me.

my ex had testicular cancer, and like @Rylee, was told he was ok but he insisted they remove his lymph nodes. that was 25 yrs ago and he is fine, so i think the most conservative treatment is the best.

as for diet, there is a lot of evidence that changing your diet can reduce inflammation and pain.

don't worry too much about the lure of pain meds. i broke my pelvis a few years ago and was prescribed pks as needed. well, i needed a lot just to make it to the bathroom. but my stomach started rebelling after a few weeks and i could not wait to get off them. and the more pain you are in, the more you feel relief rather than euphoria. i take a small daily dose now and have no issues staying with it. pks are there to help, and when used responsibly, they do.
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
@notcharlotte its only been 12 days since surgery and less than 1 week since they removed the catheter. There is still a stent in which I think is bothering me too so I'm not worried about still having discomfort. It does rise and fall but if it got bad I would call up for sure. Today there was less blood but that rises and falls too. I'm encouraged by the fact the pain has gone down some, yesterday was kinda bad but right now I feel ok and have not taken anything.

The fact I'm opiate naive is probably why I still feel the "up" feeling when I take as little as 1/2. Percs are supposed to be fairly weak but they do the job. I hope I never need something stronger. I find if I sit a certain way and don't wiggle around I'm feeling no discomfort. Straining at all or even stretching in morning seems to stimulate blood so I'm trying to avoid that but not getting any exercise. I've already lost an unknown amount of blood so I want to minimize loss.

I need an ankle replacement one of these days, not looking forward to that.
 

Gullible

Exalted member
Joined
May 15, 2011
Posts
2,599
Yesterday I was able to go all day without any pk. Today I took only about 1/4 tab and it seems to be doing the job. The discomfort is going down but very slowly. Better than going up, thats for sure.

>@Gullible, i have a hip replacement in my future, so i know what you mean!

Yeah, its a major major thing. Do you use glucosamine and chondroitin? They help stave off the day you have to get the operation. Also ultrasound and a few other things. I use US all the time, last night it was a knee giving me a problem, zapped it away, also did the ankle again and today no problem.
 

Rylee

Eminent member
Joined
Mar 29, 2014
Posts
1,563
@Gullible that's Great you were able to go w/o PKs! And today just 1/4! Better than going up in pain for sure!

Does glucosamine & chondrotin really seem to help? I have some arthritis & most likely replacement of one hip in the near future. Maybe I should try those? I've heard yes & no, guess can't hurt to try.

Please stay safe from Irma :heart:

Glad you're feeling better.
 
Last edited:
Top