• Please take a moment to review some of the most important new forum features here and here

NarxCare - Opt Out of its ugly reality

Recommended Pharmacies on Pharmacy Reviewer

ladyhurting

Distinguished member
Joined
Jun 22, 2012
Posts
626
Harry Irene's passing is coming up. With the sadness of his demise, I am angered at how we (Chronic and Intractable Pain Patients) are treated as Lab Rats in a data collection based on our injuries/diagnosed conditions/illnesses (including Cancer). By mis-use of US States' PMDP's data being harvested and used by Equfax (the Credit Reporting Company) with some covert algorithm. The algorithm is secretive and proprietary, much like consumer credit reports being calculated by Fair Isaac.

So, we are all lab rats in this database integration! Regardless of our medical diagnosis noted by ICD-9 or ICD-10 codes showing injury, post-surgery, cancer or other chronic disease.

NarxCare is sinister in its inception. It is a invasion of privacy for Drs and patients alike. NarxCare is a sick creation of APPRISS.

Sold in early October 2021 to Equifax: https://apprisscorp.com/press-relea...nsights-llc-to-equifax-in-1-825-billion-deal/

Appriss defines their "mission" as a $1.825B USD for-profit entity as "passionate about solving some of the most urgent and complex challenges for society and business – from fighting corporate and retail fraud, to battling the opioid epidemic, to keeping victims of violent crime safe and informed."


No mention about illicit cafentanil vs fentanyl on the website, either. Marketing by this company fails to distinguish Rx versus Legit Pain patients who suffer from insufficient Rx analgesia and combined with criminal street users! Guilty!

There is big money is tracking both physician/clinician prescribers and the patients under care requiring a Rx medication subject to the CSA:


There is a way to "Opt Out". Completing a written request to "Opt Out" is submitted to a patient's state of residence.

@Admin - if you like I can create a matrix table for each US State and USA territories with links for Opt Out.

Here is the info about this data theft: https://d1b1sdx6nwlphm.cloudfront.net/aware/tx_aws_prod/narxcare_user_guide.pdf

Those of us suffering from chronic pain because of illicit chemical drug overdoses are prey within Appriss pharmaceutical analytics tool.

Posting in memory of Harry Irene and others who suffer from untreated pain, acute or chronic!
 

jaders

Exalted member
Joined
Feb 1, 2012
Posts
3,560
Harry Irene's passing is coming up. With the sadness of his demise, I am angered at how we (Chronic and Intractable Pain Patients) are treated as Lab Rats in a data collection based on our injuries/diagnosed conditions/illnesses (including Cancer). By mis-use of US States' PMDP's data being harvested and used by Equfax (the Credit Reporting Company) with some covert algorithm. The algorithm is secretive and proprietary, much like consumer credit reports being calculated by Fair Isaac.

So, we are all lab rats in this database integration! Regardless of our medical diagnosis noted by ICD-9 or ICD-10 codes showing injury, post-surgery, cancer or other chronic disease.

NarxCare is sinister in its inception. It is a invasion of privacy for Drs and patients alike. NarxCare is a sick creation of APPRISS.

Sold in early October 2021 to Equifax: https://apprisscorp.com/press-relea...nsights-llc-to-equifax-in-1-825-billion-deal/

Appriss defines their "mission" as a $1.825B USD for-profit entity as "passionate about solving some of the most urgent and complex challenges for society and business – from fighting corporate and retail fraud, to battling the opioid epidemic, to keeping victims of violent crime safe and informed."


No mention about illicit cafentanil vs fentanyl on the website, either. Marketing by this company fails to distinguish Rx versus Legit Pain patients who suffer from insufficient Rx analgesia and combined with criminal street users! Guilty!

There is big money is tracking both physician/clinician prescribers and the patients under care requiring a Rx medication subject to the CSA:


There is a way to "Opt Out". Completing a written request to "Opt Out" is submitted to a patient's state of residence.

@Admin - if you like I can create a matrix table for each US State and USA territories with links for Opt Out.

Here is the info about this data theft: https://d1b1sdx6nwlphm.cloudfront.net/aware/tx_aws_prod/narxcare_user_guide.pdf

Those of us suffering from chronic pain because of illicit chemical drug overdoses are prey within Appriss pharmaceutical analytics tool.

Posting in memory of Harry Irene and others who suffer from untreated pain, acute or chronic!

Everyone wants to cash in on this phony opioid crisis now that they see folks winning big bucks from the drug companies.

Check out the video Jakemoe posted in a thread called “something to make us happy.” tho. Some judges are throwing out more cases due to the flawed data. Hopefully the tide is turning but it’s going to take a long time.

I would certainly opt out of this Narxcare BS for sure!! The name (containing “narcs”) is certainly appropriate…😏
 
Last edited:

ladyhurting

Distinguished member
Joined
Jun 22, 2012
Posts
626
@jaders - I had the pleasure and privilege chatting by telephone with Harry Irene several times. So did my late husband. Harry Irene told me about his RN sister, his Nazi-ish pain doctor who would bully him for "in between visits" urine toxicology tests and love of biking. Harry Irene suffered from a painful knee injury (biking).

Like our beloved and highly vocal @Mecha, I want to vindicate the cruel unmedicated mis-deeds that brought about Harry Irene's passing. Many patients who suffer undertreated (or undertreated) pain are kindred to our beloved Harry Irene.

To give Harry Irene's life meaning. Lord knows, how I miss his humor and good will!

Yesterday, I was in stabbing pain. My reduced Rx was down to one tablet. Too tired to trek over to a viable ER for Sumatriptan, I walked to a neighborhood pharmacy to purchase OTC Aspirin. It helped. Went again 4 hours later to purchase another packet. My gastro specialist is not going to like this, considering that I went five months without any NSAID medication because of the bleeding ulcer diagnosis. And anemia which was lowered down to a "9.1".

Pain is very real and physiological when it's intense. The NarxCare mystery algorithm is not a patient's friend, nor a physician who prescribes.
 

Mecha

Slave to Magic Wand Lady
Joined
Jun 22, 2011
Posts
8,003
Thank you @ladyhurting & @jaders.

Last year I read an extremely long and interesting article in JAMA (The Journal of the American Medical Association).

I think I wrote about it here at PR. I was shocked to my core to find out that every overdose from every death was considered an OxyContin related overdose. In other words if I overdose from Xanax, I was listed as an OxyContin overdose. I could not believe what I was reading so I researched it some more and check with some doctor friends of mine and they said that was true. I was outraged beyond belief that the US government was using these numbers, all overdose deaths, listing them as OxyContin OD’s. No matter what drug you took and overdosed on it was OxyContin. Even if there was no OxyContin in your body and you had never taken any OxyContin, you overdosed on OxyContin.

I fucking gave up. I have a Doctor who won’t even give me a tranquilizer. I’m not a baby I’m a big girl. So now I have to spend tons of money, that I don’t have, to get Xanax, which had been prescribed for me for many many years. Then my doctor died, a new guy came in and he said this is your last script. I didn’t think anything would happen but it did. It was the most horrible unbelievable withdrawal that one could think of, I thought I was the producer of a major movie. I couldn’t have anyone touch me, I was sweating like a pig. I was imagining people. I thought there was a gay party going on in my kitchen. Not that I would care, but that’s what I thought.I didn’t know where I was at and almost died.

The doctors would’ve wrote me up as an OxyContin death. I guess the same goes for Fentanyl beginning to be passed as anything else but Fentanyl.

I wish the US government would get the fuck out of our lives for good. Only 100 years ago morphine was next to the baby aspirin in every pharmacy in the country.

My grandmother took methamphetamine pills (a.k.a. black beauties) in the morning and at night she would take Triple Tuinal a heavy duty sleeping pill. Now I know this is a bad combo but this woman lived till she was 90. And all this was doctor prescribed even in the 80s.

I know how much pain our Harry was in. It was awful. He would call and tell me how bad it was, hell he needed help and couldn’t get it. I always said God gave us a great crop of opiates and other drugs grown from the ground. They were meant to be use for people who need them. It is freaking disgraceful to MAKE people, like Tommy, suffer. Someone should take a gun to the heads of the people , the higher ups who decided that Tommy couldn’t have any pain relief.

The one thing I can guarantee you is that people with money, politicians rich people, the Pope get any meds that they need at any time they need them and even if they don’t need them.

Just fuck the system because we’re never going to get out of this, ever.

Sorry for becoming so upset but this is one of the most outrageous unwarranted lessons that we have had to learn. Shame, just shameful. 😔M
 

jaders

Exalted member
Joined
Feb 1, 2012
Posts
3,560
Wow! That bit about every od being listed as an OC overdose. I can't believe they got away with that! That needs to come out big time. I'm so glad to see judges stopping holding drug companies responsible for what people do. (Never thought I'd be on the side of a drug company.) But if we want the freedom to ingest what we choose, we have to accept the consequences as our own responsibility, as it is with alcohol...

I truly hope I read something about this bogus data with the OC. I do remember reading that if someone died and just had an opiate in their system, it would be listed as an opioid death, even if that wasn't what they died from.

Hope we live long enough to see this tide turn too, Mecha, and Ladyhurting, but I'm not holding my breath. Just keep putting one foot in front of the other...🙏
 

ladyhurting

Distinguished member
Joined
Jun 22, 2012
Posts
626
Dear @Mecha I cannot believe your hellish situation! If this was me….. I would seek a referral directly from American Psychiatric Association in DC. For a specialist MD to Rx your Xanax, and monitor your symptoms on a proper dose. Back in 1999 when I had the bad news about my cervical injury, it devastated me. Sleepless nights. Constant fear. My neurosurgeon Rx’d Xanax 1mg for me (might’ve been a two week supply PRN). It was bad news. But I took my Rx’d Xanax over the course of two months, grieving for my professional life being snatched from me.


Some patients need Xanax, Librium, Valium, Ativan - whatever. What happened to you was wrong! Just like Tommy had a wretched end.

The psychiatrist I saw for “talk” and trying to get my life back was ok. He was concerned about my loss and never working in a technical position. Luckily I did return to tech work, saved our family after 9/11 happened. After 9/11 my late husband was unemployed for twenty two months! I had to be the breadwinner.

Whatever is going on in a patient’s life, long term legitimate use of Xanax or any Benzodiazepine medication…..there is a reason based in science. I am sorry you were abused by this fiend after your previous physician passed away. Why didn’t this fiend refer you elsewhere?

You had an established use of Rx Xanax. A Dr refusing to ignore your issues is stupid. Especially to a female patient! We ladies are preyed upon in society, exploited. But when a medical clinician disses our legit symptoms and refuses to address our long term history of Xanax (or any other medication) because of the CSA? It is malpractice. Drs pay malpractice insurance, minimizing Rx’d benzodiazepines means lower malpractice insurance premiums. All at the cost of patients.

Back in the mid 1990s, I remember going to a medical office in South Carolina because of a respiratory infection. I needed antibiotics. Walked into the lobby, I noticed signs “we do not prescribe narcotics”. I was shocked. Glad I lived North! How could a person with osteoporosis or kidney stones fare? No “referral “ info to a pain specialist or oncologist! No professionalism in pointing the way for legitimate pain care. It was a message of “Let us abuse patients by denying their symptoms “.

Tommy and I chatted by phone about six times circa 2014-2015. He spoke with my late husband. We were sorry when I learned the news of Tommy’s demise. My husband had the MMJ card from Spring 2014 onwards. He got some MMJ recipes from Tommy. Edibles.

If a successor physician inherits a long term patient, like yourself, he/she has a legal and moral obligation to check out past medical history of Rx’d Xanax. Or any other Rx. That is science based medical care, not abuse.

We lost Tommy too early. In winter 2017 I lost a neighbor friend who left her long term board certified pain management specialist for a closer practice. The new practice forced her from Opana to Tramadol. Plus Ativan. I warned her “Don’t leave Dr X!” She had severe burn injuries plus lumbar damage. My friend turned to the street and died from an overdose. She in her mid forties, an executive chef. Just like our beloved Tommy, it was a preventable loss.

Her birthday was yesterday. I miss her. We miss Tommy. Tommy shared the stories of his abusive pain specialist with me, a real Nazi control freak jerk.

Just need to vent! If a physician has doubts about prescribing medication, then CHECK IT OUT! Send the patient for tests! Send the patient for a behavioral consultation: our central nervous system is complex. Benzodiazepines have a legitimate role in calming down a person’s metabolism. So do sedatives.

@Mecha , I know this political intrusion into private Dr/Patient relationship is all about profit. It’s wrong. Promise me you will find a responsible Dr who will examine you, discuss your Rx use of Xanax. Whatever it is, you deserve better.

Sending my hugs!!!
 

Mecha

Slave to Magic Wand Lady
Joined
Jun 22, 2011
Posts
8,003
@ladyhurting darlin ’i have tried it all and it has been no no no. Thank you sweetheart very much for your outline of things to do that might help, but there is nothing. The woman who lives next door to me tried to “commit” suicide and theydid script her .25 mgs. After the incident. However, I would never pull anything like that. ❤️ You are the best. Thank you for sticking up for our Tommy. You are rich. I hope these days are better for you. 🤗. M
 

Santa's little helper

Exalted member
Joined
Feb 24, 2020
Posts
3,332
Harry Irene's passing is coming up. With the sadness of his demise, I am angered at how we (Chronic and Intractable Pain Patients) are treated as Lab Rats in a data collection based on our injuries/diagnosed conditions/illnesses (including Cancer). By mis-use of US States' PMDP's data being harvested and used by Equfax (the Credit Reporting Company) with some covert algorithm. The algorithm is secretive and proprietary, much like consumer credit reports being calculated by Fair Isaac.

So, we are all lab rats in this database integration! Regardless of our medical diagnosis noted by ICD-9 or ICD-10 codes showing injury, post-surgery, cancer or other chronic disease.

NarxCare is sinister in its inception. It is a invasion of privacy for Drs and patients alike. NarxCare is a sick creation of APPRISS.

Sold in early October 2021 to Equifax: https://apprisscorp.com/press-relea...nsights-llc-to-equifax-in-1-825-billion-deal/

Appriss defines their "mission" as a $1.825B USD for-profit entity as "passionate about solving some of the most urgent and complex challenges for society and business – from fighting corporate and retail fraud, to battling the opioid epidemic, to keeping victims of violent crime safe and informed."


No mention about illicit cafentanil vs fentanyl on the website, either. Marketing by this company fails to distinguish Rx versus Legit Pain patients who suffer from insufficient Rx analgesia and combined with criminal street users! Guilty!

There is big money is tracking both physician/clinician prescribers and the patients under care requiring a Rx medication subject to the CSA:


There is a way to "Opt Out". Completing a written request to "Opt Out" is submitted to a patient's state of residence.

@Admin - if you like I can create a matrix table for each US State and USA territories with links for Opt Out.

Here is the info about this data theft: https://d1b1sdx6nwlphm.cloudfront.net/aware/tx_aws_prod/narxcare_user_guide.pdf

Those of us suffering from chronic pain because of illicit chemical drug overdoses are prey within Appriss pharmaceutical analytics tool.

Posting in memory of Harry Irene and others who suffer from untreated pain, acute or chronic!

Everyone wants to cash in on this phony opioid crisis now that they see folks winning big bucks from the drug companies.

Check out the video Jakemoe posted in a thread called “something to make us happy.” tho. Some judges are throwing out more cases due to the flawed data. Hopefully the tide is turning but it’s going to take a long time.

I would certainly opt out of this Narxcare BS for sure!! The name (containing “narcs”) is certainly appropriate…😏
Jaders, I did watch a news cycle that pointed to a policy error regarding opioids and addiction; pretty sure it was Canadian. Thoughts do travel.
best(y)
 

sleeper

Lapsed Senior Member
Joined
Apr 22, 2011
Posts
203
@ladyhurting thank you for that important post. I am sending you all the best.

I have been concerned about this system for some time, but i never really knew the history.

Has anyone actually tried the opting out business? Does this work?
 
Top
AdBlock Detected

Ad blocking browser plugins interfere with some features of this forum. For the best site experience please disable your ad blocker.

I've Disabled AdBlock    No Thanks