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The silencing of pain patients.

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Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,313
@Anne Onomis...good article and I guess we can only hope for more and more like it! I've personally noticed a drastic change in attitude of nurses and doctors, particularly at the ER the minute you say you are on an opioid. Some try to cover up by being very casual, saying...oooh, and why are you on that medication? It especially gets me ticked off when they read it in the electronic records and ask when my records also list the entire medical problems which would obviously answer their question.

I'm ok with people who actually want PT and find it helpful (frankly it has always triggered my fibromyalgia) but this cognitive and behavioral therapy leaves me cold. Maybe insurance should pay for it since they don't want to pay for anything else but I just don't buy into this idea that I should learn to accept my pain - obviously I have which is why I go to doctor's for treatment!
 

Brax

Distinguished member
Joined
Jun 25, 2015
Posts
950
It´s horrible when doctors abuse patients. That´s just one form of abuse.

The patient should be the center, not the government, the doctors or the insurers.
 

jaders

Exalted member
Joined
Feb 1, 2012
Posts
3,205
This is what happens when the country is run like a business; the shareholders (i.e. lobbyists and corporations) reap the rewards, HR ignores the employee’s, and you and I should be grateful we just get a paycheck - no matter how small.

Yes, it's my personal opinion that for some reason, money in America is the "god" we worship. I don't know why, as most folks are really pretty good and want to help others, but we still glamorize having money and lots of it, as the be all, end all to happiness. I think it's sort of a "stage" America is going thru and I hope we mature out of it at some point. I think lots of Europe has, as they realize the benefits of having an educated and well cared for population.
 

Brax

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Jun 25, 2015
Posts
950
@MRNUTTY,

Oligarchy, not a democracy. I'm not sure if the USA was ever a democracry (actually, historical reference 'republic, not a democracy'). I think the last shambles of 'democracy' fell after the Fall of Communism. According to some, now you have a shadow government that is really running the country since 9/11. The reality is probably somewhere between the official institutions and the 'deep state'.

@jaders,

Obviously, money is important. But it wasn't always like this. The availability of credit cards had a lot to do with consumerism. As wel as the FED's policy of money creation, the USD lost about 96.5 % of its value (depending on source) since the year 1900. What else ? Probably lots of things. What happened in the 1970s and 1980s ?
 

jaders

Exalted member
Joined
Feb 1, 2012
Posts
3,205
@jaders,

Obviously, money is important. But it wasn't always like this. The availability of credit cards had a lot to do with consumerism. As wel as the FED's policy of money creation, the USD lost about 96.5 % of its value (depending on source) since the year 1900. What else ? Probably lots of things. What happened in the 1970s and 1980s ?

This is another area that I hold the people accountable for, not businesses tho. Yes, credit cards have made borrowing money and buying lots of stuff much easier, but I still think it's a "phase" that we will eventually grow out of. I see it in younger folks who don't want to spend huge amounts of money on big houses and cars, etc. Minimalism and simplicity and having more TIME seems much more popular amongst young folks and I'm extremely glad to see that trend. Personally I think we will eventually realize that owning lots of stuff doesn't provide happiness, is only trashing the earth and its limited resources, and that having more time and space to enjoy life does. I do have hope in the younger generation. Too bad I'll probably be gone when they really take power...:bigsmile:
 

Ringmaster

Banned
Joined
Sep 15, 2018
Posts
108
On a side note, taking pain meds away from patients who have a legitimate need won’t do s*** to curb the nationwide opioid epidemic. For all the rhetoric over this issue, all the government has accomplished is to make it harder for doctors to exercise what they feel is best for a patient (ie tougher prescribing guidelines for schedule III and II drugs).
I had been on a steady regimen with no dose increase in almost a decade. Then my pain management doc informed me he could no longer prescribe about half my meds. I haven’t felt this much pain in a long time. I’ve called off work more times in the last two months than over my entire career. When I do drag myself out of bed, it’s a struggle to keep myself upright. Forget my daily swim or helping out around the house.

This f***ing country.
 

Kevinac

Member
Joined
Sep 30, 2018
Posts
37
I just had a bilateral hip replacement here in Florida. Due to the new opoid laws, I was given 3 days of oxy and then was told to take Tylenol along with lyrica and Celebrex. My surgeon said his hands are tied. Fortunately a friend helped me out but this is insane. Why should surgical shiners suffer in pain due to these draconianna laws. It’s really unfair and ridiculous. I’m sure addicts will still find a way to get what they’re ant but in the meantime we all suffer.
 

Anne Onomis

Distinguished member
Joined
Jan 16, 2013
Posts
682
http://[email protected] this p...out-its-forced-opioid-taper-idea-8837654.html

Awesome rebuttal to forced tapering that just popped up in my feed. This lady gives some great facts that you can throw in the face of any trying to argue for kicking you off your effective opioid pain relief.

Edit: Wow, this site has a ton of great articles! This one is awesome too- http://[email protected] this p...eline-unintentional-consequences-8836710.html

On the so-called "unintentional consequences" of kicking people off their meds, and how we all knew these "suggestions" would become codified hard rules. Once again, loaded with useful facts.

... To edit again, just read through the comments in that last one and it is sickening. If you want to remove any doubt in your mind that you are doing the right thing for yourself and TPTB are the immoral ones and that criminalizing us for taking our health into our own hands under these conditions is sick, read through them.
 
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jaders

Exalted member
Joined
Feb 1, 2012
Posts
3,205
http://[email protected] this p...out-its-forced-opioid-taper-idea-8837654.html

Awesome rebuttal to forced tapering that just popped up in my feed. This lady gives some great facts that you can throw in the face of any trying to argue for kicking you off your effective opioid pain relief.

Edit: Wow, this site has a ton of great articles! This one is awesome too- http://[email protected] this p...eline-unintentional-consequences-8836710.html

On the so-called "unintentional consequences" of kicking people off their meds, and how we all knew these "suggestions" would become codified hard rules. Once again, loaded with useful facts.

... To edit again, just read through the comments in that last one and it is sickening. If you want to remove any doubt in your mind that you are doing the right thing for yourself and TPTB are the immoral ones and that criminalizing us for taking our health into our own hands under these conditions is sick, read through them.

Really great articles. I feel a lot better reading about these articulate people fighting back! We can only hope that this hysteria will lose momentum like a hurricane finally dissipating. Too bad there has already been so much collateral damage tho...
 

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,313
@Anne Onomis...that's an EXCELLENT article and one I plan to share with my doctor. I've also signed up to receive their newsletter so really appreciate the link.

Interesting that it references that Krebs study which I believe was used to pull all opioids from veterans, resulting in many suicides. She works for the VA but also has a side gig going I've read - she has financial interests in rehab/recovery centers. So of course she has an interest in yanking appropriate medication from vets who've more than paid their dues for this country. I also think her study was used in a lot of pain management classes that doctors were required to take to keep their prescribing option. It was right after my own doctor went to a training session that I suddenly got called in for a urine sample, stern talk about how my meds "don't help me" (you sure could fool me). Much of the info my doctor was throwing out was right from this Krebs playbook.

I've also been trying to find an article I know I've seen that mentioned, just in passing, that had to do with a VA funding bill where they slipped in a stipulation that NO opioids could be used to treat vets...need to research that.
 

Anne Onomis

Distinguished member
Joined
Jan 16, 2013
Posts
682
https://www.foxnews.com/health/as-o...abandon-pain-patients-driving-many-to-suicide

Wow, Fox of all outlets has published a piece addressing suicides associated with opioid discontinuation! Pleasantly surprised, it is a great article! It does show the other side's arguments, but Kolodny comes off looking like the world's biggest ass. Does his usual heroin pills bit, and accuses pain patients of being not in pain but WD (he doesn't say it outright but implies it pretty strongly). Sessions does the same, but most folks already know he is an ass.

Very glad to see this. Worried about the damage a recent book, American Overdose, could do. Halfway through and it plays up that jackass Kolodny and others like him as heros, while pain patients' advocates are accused of being greedy evildoers. Glad the book seems not to have gotten too much media attention. I am only reading it to arm myself to better argue our case, by knowing theirs thoroughly.

I just really wish I could have a chance to speak with the people like the man who considered forfeiting his life better than a violation of a law that, when you really think about it, is far less harmful than the violation of traffic laws and such many do routinely. :(
 
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jaders

Exalted member
Joined
Feb 1, 2012
Posts
3,205
https://www.foxnews.com/health/as-o...abandon-pain-patients-driving-many-to-suicide

Wow, Fox of all outlets has published a piece addressing suicides associated with opioid discontinuation! Pleasantly surprised, it is a great article! It does show the other side's arguments, but Kolodny comes off looking like the world's biggest ass. Does his usual heroin pills bit, and accuses pain patients of being not in pain but WD (he doesn't say it outright but implies it pretty strongly). Sessions does the same, but most folks already know he is an ass.

Very glad to see this. Worried about the damage a recent book, American Overdose, could do. Halfway through and it plays up that jackass Kolodny and others like him as heros, while pain patients' advocates are accused of being greedy evildoers. Glad the book seems not to have gotten too much media attention. I am only reading it to arm myself to better argue our case, by knowing theirs thoroughly.

I just really wish I could have a chance to speak with the people like the man who considered forfeiting his life better than a violation of a law that, when you really think about it, is far less harmful than the violation of traffic laws and such many do routinely. :(

Thank you so much for this article. It’s so very sad that it’s taken these extreme measures of folks actually taking their lives to wake up this gone-mad government intervention between doctors and patients. Between the suicides and the fact that rx’s have gone way down while od’s continue to climb may bring some sanity as to where to focus the attention- and it’s NOT on chronic pain patients.

I feel a smidgen of hope as I enter my “twilight” years...:bigsmile:
 

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,313
@Anne Onomis... thanks for posting that article. It's important to point out that Kolodny is a psychiatrist and not a medical doctor or pain specialist. He's on staff at Brandeis University and I was very happy to hear that staff and pain patient advocates have been trying to get this jackass fired! I don't often wish bad things on anyone but it would be nice if Lady Karma hit that guy with a bus...not to kill him cause that would be wrong...but pain?

https://www.painnewsnetwork.org/stories/2017/10/3/patient-advocates-call-on-brandeis-to-fire-kolodny
 

Bawston

Eminent member
Joined
Jan 23, 2015
Posts
1,313
Now here's an interesting rebuttal to ol' Kolodny's BS. Apparently Kolodny goes around to speaking engagements that law enforcement, medical professionals, and the people making our laws and his presentation points are brilliantly batted down by this guy... one thing I find really interesting is that the numbers of people they include in drug overdose deaths include ALL drugs - like even if you died from blood coagulants (they've probably include chemo in there too!). And the people who comment after this article have some good points too!

The kneecapping of Kolodny:

https://www.acsh.org/news/2017/10/12/opioid-epidemic-6-charts-designed-deceive-you-11935
 

Anne Onomis

Distinguished member
Joined
Jan 16, 2013
Posts
682
Thanks for the links @Bawston, excellent info! :) I'm considering writing a scathing review for the book I mentioned and I can use all this info I can get. Though it seems the reviews for it are an echo chamber, like I said, luckily it doesn't seem to be getting much attention (sad part is, even I have to admit the quality of the writing is excellent, had I gone in blind the author would have sold me on it). But there are other books like it out there.
 
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